Staff Publications

Staff Publications

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    'Staff publications' is the digital repository of Wageningen University & Research

    'Staff publications' contains references to publications authored by Wageningen University staff from 1976 onward.

    Publications authored by the staff of the Research Institutes are available from 1995 onwards.

    Full text documents are added when available. The database is updated daily and currently holds about 240,000 items, of which 72,000 in open access.

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Record number 568228
Title Disparities in cancer-related healthcare among people with intellectual disabilities:A population-based cohort study with health insurance claims data
Author(s) Cuypers, Maarten; Tobi, Hilde; Huijsmans, Cornelis A.A.; Gerwen, Lieke van; Hove, Michiel ten; Weel, Chris van; Kiemeney, Lambertus A.L.M.; Naaldenberg, Jenneken; Leusink, Geraline L.
Source Cancer Medicine (2020). - ISSN 2045-7634
Department(s) Mathematical and Statistical Methods - Biometris
Publication type Refereed Article in a scientific journal
Publication year 2020
Keyword(s) early detection of cancer - healthcare disparities - hospital - intellectual disability - neoplasms - oncology service

Background: Concerns have been raised about the accessibility and quality of cancer-related care for people with intellectual disabilities (ID). However, there is limited insight into cancer incidence and the utilization of cancer care at the ID population level to inform targeted cancer control strategies. Therefore, we aimed to examine differences in the utilization of cancer-related care between people with and without ID, identified through diagnostic codes on health insurance claims. Methods: In a population-based cohort study, Dutch individuals of all ages who received residential care through the Chronic Care Act due to an ID (n = 65 183) and an age and sex-matched sample of persons without ID (1:2 ratio), who were cancer-free at enrollment in 2013 were followed through 2015. Incidence rates (IRs) of newly started cancer care and IR ratios (IRRs) with 95% CIs were used to compare groups. Separate analyses were performed per cancer type. Results: Individuals with ID received less cancer-related care than individuals without (IRR = 0.64, 95% CI 0.62-0.66). Differences increased with age and were larger for females than for males. Utilization of care for cancers within the national screening program (female breast, cervical, and colon cancer) was lower for people with ID compared to people without ID. Conclusion: Cancer may be underdiagnosed and/or undertreated in people with ID, or cancer is truly less prevalent in this population. In particular, the differences detected between males and females with ID, and the potential underutilization of national screening programs, require urgent follow-up investigations.

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