Uncertainty in times of medical emergency: Knowledge gaps and structural ignorance during the Brazilian Zika crisis
Kelly, Ann H. ; Lezaun, Javier ; Löwy, Ilana ; Matta, Gustavo Corrêa ; Oliveira Nogueira, Carolina de; Rabello, Elaine Teixeira - \ 2020
Social Science and Medicine 246 (2020). - ISSN 0277-9536
Brazil - Emergency research - Public health emergency - Uncertainty - Zika
Uncertainty was a defining feature of the Brazilian Zika crisis of 2015–2016. The cluster of cases of neonatal microcephaly detected in the country's northeast in the second half of 2015, and the possibility that a new virus transmitted by Aedes mosquitoes was responsible for this new syndrome, created a deep sense of shock and confusion in Brazil and around the world. When in February 2016 the WHO declared a Public Health Emergency of International Concern (PHEIC), it noted that it did so on the basis of what was not known about the virus and its pathogenic potential. To better understand the role that non-knowledge played in the unfolding of the Brazilian Zika crisis we differentiate between three different kinds of uncertainty: global health uncertainty, public health uncertainty, and clinical uncertainty. While these three forms of uncertainty were difficult to disentangle in the early weeks of the crisis, very soon each one began to trace a distinct trajectory. Global health uncertainty centered on the question of the causative link between Zika virus infection and congenital malformations, and was declared resolved by the time the PHEIC was lifted in November 2016. Public health and clinical uncertainty, in contrast, persisted over a longer period of time and did, in some important ways, become entrenched. This taxonomy of uncertainties allows us to explore the systematic nonproduction of knowledge in times of medical emergency, and suggests structural limitations in the framework of “emergency research” that global health institutions have developed to deal with unexpected threats.
Experimental trials in Europe 2019 edition
Garnica, I. ; Lezaun, J.A. ; Gonzalez-Andujar, J.L. ; Pedraza Jimenez, V. ; Antichi, D. ; Frasconi, C. ; Carlesi, S. ; Lazzaro, M. ; Leoni, F. ; Moonen, A.C. ; Huiting, H.F. ; Riemens, M.M. ; Chiarini, F. ; Zanche, A. De - \ 2019
Veneto Agricoltura - 150 p.
Experimental trials in Europe 2018 edition
Garnica, I. ; Lezaun, J.A. ; Gonzalez-Andujar, J.L. ; Pedraza Jimenez, V. ; Antichi, D. ; Frasconi, C. ; Carlesi, S. ; Lazzaro, M. ; Leoni, F. ; Moonen, A.C. ; Huiting, H.F. ; Riemens, M.M. ; Chiarini, F. ; Zanche, A. De; Trevisan, M. - \ 2018
Veneto Agricoltura - 150 p.
Inovação responsável através de fronteiras: tensões, paradoxos e possibilidades
Macnaghten, Phil ; Owen, Richard ; Stilgoe, Jack ; Wynne, Brian ; Azevedo, Adalberto ; Campo, André Luiz Sica De ; Chilvers, Jason ; Dagnino, Renato ; Giulio, Gabriela Di ; Frow, Emma ; Garvey, Brian ; Groves, Christopher ; Hartley, Sarah ; Knobel, Marcelo ; Kobayashi, Elizabete ; Lehtonen, Markku ; Martin, Javier Lezaun James ; Mello, Leonardo Freire De ; Monteiro, Marko ; Costa, Janaina Pamplona Da ; Rigolin, Camila ; Rondani, Bruno ; Staykova, Margarita ; Taddei, Renzo ; Till, Chris ; Tyfield, David ; Velho, Léa ; Wilford, Sara - \ 2015
Teoria e Pesquisa 24 (2015)2. - ISSN 0104-0103 - p. 18 - 24.
In March 2014 a group of early career researchers
and academics from São Paulo state and from the UK met
at the University of Campinas to participate in a workshop
on ‘ResponsibleInnovation and the Governance of Socially
Controversial Technologies’. In this Perspective we describe key
reflections and observations from the workshop discussions, paying
particular attention to the discourse of responsible innovation from
a cross-cultural perspective. We describe a number of important
tensions, paradoxes and opportunities that emerged over the
three days of the workshop.